Two Steps Forward, One GIANT Leap Back

So the end of last week started out with many steps going forward for Keaton. He can now maintain his own body temperature, so he was moved into an open crib and had cute little clothes on him. He has also been growing a ton and currently weighs 4 pounds, 4 ounces. Unfortunetly the beginning of this week he got really sick. They tested him for everything and could not figure out why he was doing so poorly. They had turn his oxygen up and he still was breathing poorly. His stomach was swollen, they did an ultra sound and found he had a lot of air in his tummy and his bowels were dialated. He also needed a blood transfusion, which he recieved. They also attempted a spinal tap, but they were not able to get any spinal fluid, and they will not attempt it again. After some time, Keaton has slowly started to get better. He is now breathing better, all the air has been taken out of him (which they believe the air filled his tummy when they had to crank up the oxygen flow), his bowels are back to normal and the blood transfusion seems to have worked wonders. We are so relieved.

It has been a really tough, emotional week and I know that I have not necessarily been taking care of myself. I got really sick yesterday and went to urgent care- it is believed I have a stomach ulcer. YUCK! The pain is a lot better today. I have slept most of the day and am grateful for all the phone calls of concern from friends and family! Thank you! We are striving to have a normal life these days, but it doesn't always work out! :) We will keep you posted!