I don't have much time to write, but...Keaton had a sleep study done last Thursday where they determined Keaton has SEVERE obstructive sleep apnea. A mild case would be if he held his breath one time an hour, moderate would be 5 times an hour, but Keaton holds his breath on average at least 47 times per hour. He should sound asmatic for how much he does it. Most of this is not picked up on the regular monitor because it happens so fast, so we had no idea it was so bad. They did a test yesterday where they put a scope/camera down his throat to see how inflamed it was and/or if there was an obstruction causing this, but they found nothing. They are going to do a 3D MRI and a swallow study to make sure they are not missing something and to make sure his food is going to the right place and digesting properly, then at that point, they will try to make it possible for him to finally come home- He is on room air, but getting flow through a nasal canula because that seems to decrease the amount of spells he's having. He was off oxygen and flow and everything for over a week, but he needs this extra help now. We will know more after Friday but in the meantime, we are just waiting...He's 8 pounds, 3 ounces now and doing great in every other area.
I am so ready to be done with this...I am glad we are at least finally getting some answers that makes us aware of how he really did need to be in the hospital all this time to get the extra help. But now I am ready for him to be home...Thanks always to everyone for their prayers.